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The Life-Changing Power of a Clinical Trial, from a Caregiver's Perspective

Dr Justin Hopkin opened the 2025 Patients as Partners program telling the story of how a life-threatening diagnosis impacted his son, his family, and their decision to seek out clinical trials. 

April 28, 2025
The Life-Changing Power of a Clinical Trial, from a Caregiver's Perspective

In this podcast: 

Recorded at the 2025 Patients as Partners in Clinical Research conference, patient advocate and caregiver Dr Justin Hopkin, University of Rochester, describes his family's journey before, during and after his son was diagnosed with a rare, life-threatening disease. 

Dr Hopkin talks about the process of getting a diagnosis, the critical role of a clinical trial for his son, the impact on his other children, and his advice for medicine developers and clinical trial designers.

Follow along with Dr Hopkin's slides by clicking here.

For more information, go to PatientsAsPartnersConference.com

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