About this webinar:
Rare Patient Voice shares new results from a survey conducted amongst their patient participant community. Pam Cusick, SVP, Rare Patient Voice, goes through the results, and what they mean for pharma, followed a live audience Q&A. Patient/caregiver Keri McDonough joins Ms Cusick on the webinar. In addition to working in industry, Keri has taken part in clinical trials herself and will be providing her opinions and experience from a patient perspective.
Attendees will hear patient perspectives on:
- Their relative awareness of clinical research
- Their content preferences for learning about clinical trials
- Who they view as trustworthy sources when it comes to information
- Overall barriers to and concern about research
This webinar will be beneficial for VPs, Directors and Managers working in:
Patient advocacy, patient engagement, medical affairs, clinical trial recruitment, clinical operations
About Rare Patient Voice:
Rare Patient Voice provides patients and family caregivers an opportunity to participate in all types of research including market research, health economics outcomes and real-world evidence, user experience/human factors studies, and clinical trials. The RPV community includes over 145,000 patients and family caregivers across more than 1,500 diseases, both rare and non-rare, in nine countries.
About Patients as Partners in Clinical Research, the webinar’s associated conference:
Patients as Partners is co-produced with patients, industry, academia, government and nonprofit organizations to establish a well-rounded program that addresses the needs of all stakeholders seeking to implement and advance patient involvement, access and diversity across the entire clinical development continuum. To learn more, visit patientsaspartners.org.
