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Patient Preferences on Clinical Trial Codesign

Sponsored by Rare Patient Voice

Rare Patient Voice shares survey results from patients on their attitudes, concerns and feedback on clinical trial codesign.

June 10, 2025, 11:00 AM
Patient Preferences on Clinical Trial Codesign
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Registration is complimentary and required to attend.

About this webinar: 

Rare Patient Voice is sharing new results from a survey conducted amongst their patient participant community on clinical trial codesign, to bring clarity to why and how the patient voice should be an integral part of trial design. 

Pam Cusick, SVP, Rare Patient Voice, will go through the results, and what they mean for pharma, before a live audience Q&A. This survey included patients who have participated in clinical trial codesign, and those who have not. Later, Pam will be joined by Mindy Cameron, a family caregiver who has participated in research codesign and will share her insights as well. 

Attendees will hear patient perspectives on: 

  • The most important aspects of the trial process for patients to provide their input 
  • Their relative awareness of clinical research and codesign
  • What would encourage them to participate
  • Their concerns about participating 
  • Their experience throughout the process 


This webinar will be beneficial for VPs, Directors and Managers working in:
  • Clinical Operations, Patient Engagement, Medical affairs, and Marketing, but all are welcome to join. 


About Patients as Partners in Clinical Research, the webinar’s associated conference:

Patients as Partners is co-produced with patients, industry, academia, government and nonprofit organizations to establish a well-rounded program that addresses the needs of all stakeholders seeking to implement and advance patient involvement, access and diversity across the entire clinical development continuum. To learn more, visit patientsaspartners.org.

Speakers
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Registration is complimentary and required to attend.

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