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Summary:
In this podcast, you will hear how Claas Röhl founded NF Kinder after his daughter was diagnosed with Neurofibromatosis Type 1 (NF), a rare genetic disorder that causes tumors to form along nerves. Claas became an advocate for his daughter and patients impacted by this rare disorder. In this conversation from the 2022 Patients as Partners EU conference, moderated by Renata Lazarova, MD, Noema Pharma, Claas will discuss his involvement in research, how he helped set up the first pediatric department for NF at a major medical university in Austria, and his efforts to create a national registry of NF patients.
To learn more about the Patients as Partners EU conference, please visit patientsaspartnerseu.com.
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