2017 Lead Sponsor
2017 Executive Sponsor
2017 Associate Sponsors
2017 Supporting Sponsor
2017 Supporting Partners
2017 Media Partners
Ken Getz, MBA
Judith Ng-Cashin, MD
Suzanne Schrandt, JD
– Overview –
We were delighted to present the the 4th annual Patients as Partners program that took place March 2-3, 2017 in Philadelphia.
We would like to thank our attendees and speaking faculty for continuously challenging and encouraging us to develop a program that puts patient engagement theory into practice. The goal of creating patient centricity as the ecosystem within pharma can not be achieved without patient involvement.
Patients as Partners is accredited by Patients Included and addressed what matters most to patients to enable them to support clinical research:
- Understanding and incorporating the patient’s voice in designing clinical trials and developing a clinical endpoint
- Vastly improving the patient’s entire experience in a clinical trial
- Empowering the patient in the new medicines development process
Patients as Partners was co-produced with patients, industry, academia, government and nonprofit organizations to establish a well-rounded program that addressed the needs of all stakeholders seeking to implement and advance patient involvement across the entire clinical development continuum.
Each session put ideas into action and demonstrated the what, where, when and how behind the topic. They also demonstrated how these insights were used to co-create solutions with patients and measure the impact of those initiatives.
Additionally, most sessions had at least one confirmed patient speaker to ensure the patient perspective is represented for the topic at hand.
– Patient Engagement Toolbox: How Does it Work? –
- The conference room was set up in rounds for easier interaction and each table was provided with a paper “Tool-Box” and an assortment of specially designed materials to help capture ideas.
- Each session concluded with a list of key take-aways presented from the session representative.
- At the end of each session, time is specifically allotted to organize ideas.
- During the breaks and lunch ideas were also shared around the room at designated areas.
- Result: Each attendee walked away with a toolbox full of ideas that will support their patient involvement initiatives.
– Patient Q&A Platform –
Patients were given first opportunity to address their questions to the speaking faculty to ensure their voice and concerns are addressed.
– “Ask the Patient” Program –
We were pleased to bring “Ask the Patient” to Patients as Partners, a program representing a group of individuals who’ve experienced a clinical trial. These patients, our Medical Heroes, were at Patients as Partners to answer questions about their clinical trial experience. It was a great opportunity to learn about the realities of a clinical trial directly from the patient’s point of view. They had a badge identifying their participation and were available throughout the conference.
– Who Will Benefit From Patients as Partners? –
Patient Organizations / Advocacy Groups:
- Presidents/Vice Presidents
- Patient Liaisons
- Chief Patient Officers
- Patient Retention
- Patient Engagement
- Patient Recruitment/Enrollment
- Medical/Clinical Affairs
- Clinical Innovation
- Trial Optimization
- Clinical Design
- Clinical Operations
- Clinical Site Services
- Clinical Study Coordinator
- Clinical Study Investigators
- Clinical Research Associate/Clinical Site Monitor
- Medical Science Liaison
- Data Capture and Data Management (and Data Collection)
- Clinical Research and Translational Medicine
- Patient Recruitment, Retention and Engagement
- Government agency representatives working with patient advocacy
From Patient Service Providers:
- Institutional Review Boards
- Patient Recruitment firms
- Patient Mobile App solutions
- Patient software solutions
- Patient payment systems
- Point of Care Lab products for patients
- Clinical Trial Material companies
- EMR companies
We look forward to announcing dates for our 2018 Patients as Partners program soon.
"The conference was amazing. I learned and felt invigorated and even more committed to ensure the voice of the patient is heard!"
- Pam Bennett, Purdue Pharma
"I think it was an excellent and balanced meeting where everybody had a voice and everybody listened. This spirit is key as we make progress!"
- Tony Hoos, Amgen Europe
"It was a well planned, well run, and a productive meeting. I learned a lot and plan to follow up on several things that were mentioned. I am especially interested in promoting the replication of EUPATI in the United States!"
- Megan O'Boyle, Phelan-McDermid Syndrome International Registry
"This is my 2nd year at this meeting – and it is the one place where I really learn from the patients/advocates and from others in industry and research. The honest dialogue is highly valued."
- Kathleen Foley, Pfizer
"I learned so much being a part of this forum and am grateful to have been included as a speaker as well as a participant."
- Christi Marsh, UCBCares
"The meeting was very informative, a very good cross section of organizations involved. Very good opportunity to network and share ideas."
- Diane Gross, Lupus Research Institute
"The conference was excellent and very relevant to my current projects."
- Pamela Knight, Children’s Tumor Foundation
"This was an excellent event. Wonderful and insightful speakers, great camaraderie among attendees with a true desire to share ideas and best practices."
- Gail Adinamis, GlobalCare Clinical Trials
"I thought this was a very nice conference with a lot of good discussion on very important topics."
- Christina Roman, Cystic Fibrosis Foundation
"Great conference. Loved the speakers and great networking opportunities."
- Jill McNair, CISCRP
"This was a perfect conference for a first-timer. The atmosphere was great, everyone was friendly, and the sessions were informative."
- Alicia Mitchell, HealthiVibe, LLC
"Thank you for organizing this conference. I felt my overall understanding of clinical trials practices was enhanced. Networking opportunities were excellent."
- Connie Lee, Angioma Alliance
"Excellent conference-see you next year!"
- Sondra Smyrnios, Alkermes