2018 Executive Sponsor

Health Perspective Group

2018 Associate Sponsors

Splash Clinical

2018 Exhibitors

Artcraft Health
Rare Patient Voice
rareLife solutions

2018 Supporting Partners

Myeloma Crowd
Patient Empowerment Network
Patient Worthy

2018 Media Partners

BioPharm Insight
BioPharma Dive
Gene Therapy Net
Life Science Leader
Rebar Interactive
SciDoc Publishers
Technology Networks

The 5th annual Patients as Partners program was the only conference in the US that demonstrated how to involve patients throughout the entire medicines development life cycle to drive greater efficiencies in clinical research.

2018 Featured Speakers

Ken Getz, MBA

Roslyn Schneider, MD

Suzanne Schrandt
Arthritis Foundation

Beth Zaharoff

Marc Boutin, JD
National Health Council

Geraldine Blavat
Patient and Advocate

Stefanie Joho
Survivor and Advocate

Meyer Carol color

Carol Meyer

– What to Expect –


– Overview –

Patients as Partners was co-produced with patients, industry, academia, government and nonprofit organizations to establish a well-rounded program that addressed the needs of all stakeholders seeking to implement and advance patient involvement across the entire clinical development continuum.

Patients as Partners US is accredited by Patients Included and addresses what matters most to patients to enable them to support clinical research:

  1. Understanding and incorporating the patient’s voice in designing clinical trials and developing a clinical endpoint
  2. Vastly improving the patient’s entire experience in a clinical trial
  3. Empowering the patient in the new medicines development process
We were pleased to bring back “Ask the Patient” to Patients as Partners US, a program representing a group of individuals who’ve experienced a clinical trial.

These patients, our Medical Heroes, were available to answer questions about their clinical trial experience. It was a great opportunity to learn about the realities of a clinical trial directly from the patient’s point of view. They wore a badge identifying their participation and were available throughout the conference. We will also had an area in the exhibit hall to meet them during breaks.

  • The conference room was set up in rounds for easier interaction and each table was provided with a paper “Tool-Box” and an assortment of specially designed materials to help capture ideas.
  • Each session concluded with a list of key take-aways presented from the session representative.
  • Result: Each attendee walked away with a toolbox full of ideas that will support their patient involvement initiatives.

Turning  Discussion Into Action

Dr Theresa Mullin, FDA, delivered a progress report on PDUFA VI and an update on the new performance and procedural goal at the 2017 conference.

Ken Getz, Tufts CSDD, CISCRP, delivered a presentation on raising awareness in clinical research at the 2017 conference.

Marilyn Metcalf, GSK, led a patient and researcher panel on the medicine information exchange at the 2017 conference.

A multi-stakeholder panel addressing patient and industry needs in medicines development.
From left to right: Ken Getz, Tufts, CISCRP, T.J. Sharpe, Patient and Advocate, Durhane Wong-Reiger, PhD, Canadian Organization for Rare Disorders, Jean McCoy, Health Advocacy Strategies, Janet Freeman-Daily, Lung Cancer Patient and Activist, Marilyn Metcalf, GSK


A special thanks to our advisors for their unwavering guidance and expertise in helping us with the research to craft an in-depth agenda that puts the “discussion” around patient involvement into action across the entire clinical development continuum.

If you would like to be involved in the 6th annual Patients as Partners program, please email service@tcfllc.org.



Kate Woda
Conference Director

Valerie Bowling New


Valerie Bowling
Executive Director

Meredith Sands
Executive Director, Business Development 


Elizabeth Bard
Business Development Manager