2018 Media Partners
2017 Lead Sponsor
2017 Executive Sponsors
2017 Associate Sponsors
2017 Supporting Sponsors
2017 Supporting Partners
2017 Media Partners
2017 Featured Speakers
|Anton Hoos, MD, PhD, MBA
| Tanja Keiper
PSC Patients Europe
– Overview –
We were delighted to bring the Patients as Partners US event to Europe. We would like to thank our European attendees at the US conference for challenging and encouraging us to bring the conference to Europe. The goal of creating patient centricity as the ecosystem within pharma can not be achieved without patient involvement.
Patients as Partners Europe is accredited by Patients Included and addressed what matters most to patients to enable them to support clinical research:
- Understanding and incorporating the patient’s voice in designing clinical trials and developing a clinical endpoint
- Vastly improving the patient’s entire experience in a clinical trial
- Empowering the patient in the new medicines development process
Patients as Partners EU was co-produced with patients, industry, academia, government and nonprofit organizations to establish a well-rounded program that addressed the needs of all stakeholders seeking to implement and advance patient involvement across the entire clinical development continuum.
Each session put ideas into action and demonstrated the what, where, when and how behind the topic. The sessions demonstrated how these insights were used to co-create solutions with patients and measure the impact of those initiatives.
Additionally, over 10 sessions had at least one confirmed patient speaker to ensure the patient perspective was represented for the topic at hand.
-Patient Involvement Toolbox: How Does it Work? –
- The conference room was set up in rounds for easier interaction and each table was provided with a paper “Tool-Box” and an assortment of specially designed materials to help capture ideas.
- Each session concluded with a list of key take-aways presented from the session representative.
- At the end of each session, time was specifically allotted to organize ideas.
- During the breaks and lunch ideas were also shared around the room at designated areas.
- Result: Each attendee walked away with a toolbox full of ideas that will support their patient involvement initiatives.
– Patient Q&A Platform –
Patients were given first opportunity to address their questions to the speaking faculty to ensure their voice and concerns were addressed.
– “Ask the Patient” Program –
We were pleased to bring “Ask the Patient” to Patients as Partners EU, a program representing a group of individuals who’ve experienced a clinical trial. These patients, our Medical Heroes, were at Patients as Partners EU to answer questions about their clinical trial experience. It was a great opportunity to learn about the realities of a clinical trial directly from the patient’s point of view. They had a badge identifying their participation and were available throughout the conference. We also had an area in the exhibit hall to meet them during breaks.
– Who Will Benefit From Patients as Partners Europe? –
Patient Organizations / Advocacy Groups:
- Presidents/Vice Presidents
- Patient Liaisons
- Chief Patient Officers
- Patient Retention
- Patient Engagement
- Patient Recruitment/Enrollment
- Medical/Clinical Affairs
- Clinical Innovation
- Trial Optimization
- Clinical Design
- Clinical Operations
- Clinical Site Services
- Clinical Study Coordinator
- Clinical Study Investigators
- Clinical Research Associate/Clinical Site Monitor
- Medical Science Liaison
- Data Capture and Data Management (and Data Collection)
- Clinical Research and Translational Medicine
- Patient Recruitment, Retention and Engagement
- Government agency representatives working with patient advocacy
From Patient Service Providers:
- Institutional Review Boards
- Patient Recruitment firms
- Patient Mobile App solutions
- Patient software solutions
- Patient payment systems
- Point of Care Lab products for patients
- Clinical Trial Material companies
- EMR companies
A special thanks to our advisors for their unwavering guidance and expertise in helping us with the research to craft an in-depth agenda that puts the “discussion” around patient involvement into action across the entire clinical development continuum.
We look forward to announcing dates for our 2018 Patients as Partners EU program soon.
Executive Director, Business Development