Patients Europe 2020 | The Conference Forum

2020 Lead Sponsor

2020 Executive Sponsors

2020 Associate Sponsors

2020 Exhibiting Companies

2020 Supporting Partners

2020 Media Partners

2020 Conference Supporter

About Patients as Partners EU

Patients as Partners EU is the first European event dedicated to:

The program which celebrated it’s 4th year demonstrates how patient engagement and involvement gets done. It is co-produced with industry, patient advocacy and public sector voices. Each session puts ideas into action.

2020 Co-Chairs

The 2020 program featured an outstanding line-up of new sessions, led by both patients and industry, and includes a series of formats with multi-stakeholder perspectives.

Patient-led discussions included:

Insights and Lessons from a Patient Advocate who Experienced the GDNF Trial
My Ideal Trial Design, with Patients who have Experienced at Least One Clinical Trial
Joint Patient Perspectives on How to Best Collaborate with Industry for Patient Benefit

Access to Treatment and Medication in Eastern European EU Member States
Demonstrating Patient Value in Working with Industry
Caregiver and Patient Experience in a Clinical Trial

Industry-led examples before and after patient involvement included:

Co-creating a Patient Centricity Charter with Patients to Establish and Elevate Said Principles
How Takeda is Using Digital Journey Mapping to Design Patient-Led Trials
Santhera on Building and Co-Creating a Systematic Patient Journey Framework
The Progress of GSK’s Training Program on Building Patient Engagement, Communication Skills & Competencies
J&J on HealthCaring Conversations for Clinical Research™: An Evidence-based Approach to Patient-Centered Conversations

Norgine on The Role of Social Media and The Rise of the Expert Patient
Multistakeholder Collaboration to Enhance Patient-Focused Education, Research and Drug Development
Novo Nordisk on Building Patient Advisory Boards
Ultragenyx, a Rare Disease Biotech, on Employing Virtual Advisory Boards to Support Patient Convenience

Multiple-perspective discussions included:

How Regulations are Incorporating the Patient Voice with Sosei Heptares and Grünenthal
What to Know about Good Patient Public Involvement (PPI) and the Impact on Health Technology Assessment (HTA) Decisions

A Multi-Stakeholder Take on Defining a Sustainable Framework for Patient Engagement, Moderated by Pfizer with Representation from EFPIA and European Patients’ Foru

Networking

“Ask the Patient” Program

Patients as Partners EU was pleased to bring back the “Ask the Patient” program, representing a group of individuals who’ve experienced a clinical trial. This unique opportunity is designed to help foster an understanding of the patient perspective, to further understand and improve how we currently design and conduct clinical trials.

Exhibits

Attendees met with exhibitors during the breaks to learn about the innovators bringing solutions to engage patients and reduce their burden to participate in clinical research. Exhibitor expertise ranged from patient engagement specialists, digital companies, healthcare communications firms, CROs, new technologies, patient recruitment firms and more.

Why Now?

In a world where only 10% of medicines make it to launch, incorporating a patient-centric study design has been proven beneficial for industry. In fact, an Economist Intelligence Unit study reported that medicines developed with patient preferences and input early on, showed a 10-20% increase in likelihood of launch compared to medicines without this approach. Conversely, not involving patients early in medicines development increases the risk of a failed trial.

We hope you can join us for our global virtual Patients as Partners meeting on August 19-21. Thank you.

Sincerely,