2020 Lead Sponsor

Parexel

2020 Executive Sponsors

Origins Insights
WCG

2020 Associate Sponsors

ICON
Langland
MRN
Observia Group
PatchAi

2020 Exhibiting Companies

Cuttsy + Cuttsy
mdgroup

2020 Supporting Partners

CISCRP
EFPIA

2020 Media Partners

Healthcare Tech Outlook
PharmaVoice

2020 Conference Supporter

Ataxia and Me

About Patients as Partners EU

Patients as Partners EU is the first European event dedicated to:

The program which celebrated it’s 4th year demonstrates how patient engagement and involvement gets done. It is co-produced with industry, patient advocacy and public sector voices. Each session puts ideas into action.

2020 Co-Chairs

The 2020 program featured an outstanding line-up of new sessions, led by both patients and industry, and includes a series of formats with multi-stakeholder perspectives.

Patient-led discussions included:


  • Insights and Lessons from a Patient Advocate who Experienced the GDNF Trial
  • My Ideal Trial Design, with Patients who have Experienced at Least One Clinical Trial
  • Joint Patient Perspectives on How to Best Collaborate with Industry for Patient Benefit
  • Access to Treatment and Medication in Eastern European EU Member States
  • Demonstrating Patient Value in Working with Industry
  • Caregiver and Patient Experience in a Clinical Trial

Industry-led examples before and after patient involvement included:


  • Co-creating a Patient Centricity Charter with Patients to Establish and Elevate Said Principles
  • How Takeda is Using Digital Journey Mapping to Design Patient-Led Trials
  • Santhera on Building and Co-Creating a Systematic Patient Journey Framework
  • The Progress of GSK’s Training Program on Building Patient Engagement, Communication Skills & Competencies
  • J&J on HealthCaring Conversations for Clinical Research™: An Evidence-based Approach to Patient-Centered Conversations
  • Norgine on The Role of Social Media and The Rise of the Expert Patient
  • Multistakeholder Collaboration to Enhance Patient-Focused Education, Research and Drug Development
  • Novo Nordisk on Building Patient Advisory Boards
  • Ultragenyx, a Rare Disease Biotech, on Employing Virtual Advisory Boards to Support Patient Convenience

Multiple-perspective discussions included:


  • How Regulations are Incorporating the Patient Voice with Sosei Heptares and Grünenthal
  • What to Know about Good Patient Public Involvement (PPI) and the Impact on Health Technology Assessment (HTA) Decisions
  • A Multi-Stakeholder Take on Defining a Sustainable Framework for Patient Engagement, Moderated by Pfizer with Representation from EFPIA and European Patients’ Foru

Networking


 

“Ask the Patient” Program


Patients as Partners EU was pleased to bring back the “Ask the Patient” program, representing a group of individuals who’ve experienced a clinical trial. This unique opportunity is designed to help foster an understanding of the patient perspective, to further understand and improve how we currently design and conduct clinical trials.

 

Exhibits


Attendees met with exhibitors during the breaks to learn about the innovators bringing solutions to engage patients and reduce their burden to participate in clinical research. Exhibitor expertise ranged from patient engagement specialists, digital companies, healthcare communications firms, CROs, new technologies, patient recruitment firms and more.

 

Why Now?


In a world where only 10% of medicines make it to launch, incorporating a patient-centric study design has been proven beneficial for industry. In fact, an Economist Intelligence Unit study reported that medicines developed with patient preferences and input early on, showed a 10-20% increase in likelihood of launch compared to medicines without this approach. Conversely, not involving patients early in medicines development increases the risk of a failed trial.

We hope you can join us for our global virtual Patients as Partners meeting on August 19-21. Thank you.  

Sincerely,

Valerie Bowling New

Valerie Bowling
Executive Director

Allyson Adams
Marketing Manager

Meredith Sands
Executive Director, Business Development

Elizabeth Bard
Business Development Manager

Adam Kolanko
Business Development Manager

Meg

Meg Gould
Senior Conference Planner