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2020 Lead Sponsor

Parexel

2020 Associate Sponsors

MRN

Bringing Value Back to Patients

Patients as Partners EU is the first European event to help incorporate the voice of the patient throughout medicines development. This 4th annual program’s core theme emphasizes bringing value back to patients.

The program is co-produced with industry, patient advocacy and public sector voices to implement and advance patient involvement across the entire clinical development continuum. Each session puts ideas into action and demonstrates the what, where, when and how behind the topic.

The 2020 program features an outstanding line-up of new sessions, led by both patients and industry, and includes a series of formats with multi-stakeholder perspectives.

Patient-led discussions include:


  • Insights and Lessons from Lesley Gosden, a Patient Advocate who Experienced the GDNF Trial
  • Ask the Patient Panel: My Ideal Trial Design, with Patients who have Experienced at Least One Clinical Trial
  • Joint Patient Perspectives on How to Best Collaborate with Industry for Patient Benefit
  • Access to Treatment and Medication in Eastern European EU Member States, with Myeloma Euronet Romania and Akcea Therapeutics, a Rare Disease Biotech
  • Demonstrating Patient Value in Working with Industry, featuring International Alliance of Dermatology Patient Organizations and LEO Pharma

Industry-led discussions include:


  • Janssen on Creating and Scaling a Patient-Centric Culture
  • Takeda on Using Digital Journey Mapping to Design Patient-Led Trials
  • Santhera on Building and Co-Creating a Systematic Patient Journey Framework
  • GSK on Upskilling Communications in Patient Engagement
  • J&J on HealthCaring Conversations for Clinical Research™: An Evidence-based Approach to Patient-Centered Conversations
  • Norgine on The Role of Social Media and The Rise of the Expert Patient
  • Ipsen on Strengthening the Patient Voice in Plain Language Summaries with Patients as Authors
  • Novo Nordisk on Building Patient Advisory Boards
  • Ultragenyx, a Rare Disease Biotech, on Employing Virtual Advisory Boards to Support Patient Convenience

Multiple-perspective discussions include:


  • Patient Involvement in Regulatory Decisions with Sosei Heptares and Grünenthal
  • The Impact of Patient Public Involvement (PPI) on Health Technology Assessment (HTA) Decisions, Moderated by Merck with Representation from: Health Technology Wales and the European Federation of Neurological Associations
  • A Multi-Stakeholder Take on Defining a Sustainable Framework for Patient Engagement, Moderated by Pfizer with Representation from: EFPIA and European Patients’ Forum

Networking


“Ask the Patient” Program


Patients as Partners EU is pleased to bring back the “Ask the Patient” program, representing a group of individuals who’ve experienced a clinical trial. This unique opportunity is designed to help foster an understanding of the patient perspective, to further understand and improve how we currently design and conduct clinical trials.

 

 

Therapy Dogs Teaching Humans Empathy and Working with Patients


Therapy Dogs Nationwide (TNDW) is a charity bringing dogs to patients. TDNW will be participating at Patients as Partners Europe where their four-legged ambassadors will meet and greet attendees during networking breaks.

 

 

 

Exhibits


Meet the innovators behind the patient empowerment movement during our networking breaks. From patient engagement specialists, digital companies, healthcare communications firms, CROs, new technologies, patient recruitment firms and more, the service providers you’ll meet onsite have a demonstrated commitment to innovating for patients.

 

Why Now?


In a world where only 10% of medicines make it to launch, incorporating a patient-centric study design has been proven beneficial for industry. In fact, an Economist Intelligence Unit study reported that medicines developed with patient preferences and input early on, showed a 10-20% increase in likelihood of launch compared to medicines without this approach. Conversely, not involving patients early in medicines development increases the risk of a failed trial.

Registration is now open. We look forward to having you join us for the 2020 Patients as Partners EU conference in London.

Sincerely,


Kristen Tadrous

Senior Conference Producer

Valerie Bowling New


Valerie Bowling

Executive Director

Meredith Sands
Executive Director, Business Development

Meg

Meg Gould
Senior Conference Planner

Elizabeth Bard
Business Development Manager

Allyson Adams
Marketing Manager