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CISCRP Names Patients as Partners Speaker Kyle Bryant a Medical Hero
December 21, 2015
“There’s a chance that these drugs could be therapeutic for me, but that’s not why I participate. I participate because I want to push the science forward. There is no way to get these trials done without participants. Even if these drugs aren’t helpful for me now, it will help find something in the future.”
– Kyle Bryant, rideATAXIA
Patients as Partners speaker Kyle Bryant was diagnosed at the age of 17 with Friedreich’s Ataxia (FA), a rare, progressive neuromuscular disorder. He was told there is no treatment or cure and so turned to cycling as a means of therapy and fundraising opportunity to further research in this rare disease space. Kyle’s participation in clinical trials gives him hope in that he can help not only himself, but future developments aimed at finding a potential cure for the disease. Kyle will be sharing his story at the 3rd Annual Patients as Partners program in March in Philadelphia.
Abstract: Getting the Wheels Turning for a Cure
When Kyle Bryant was diagnosed with Friedreich’s Ataxia (FA), a rare, progressive neuromuscular disorder, at age 17, he knew he had to do something, so he did the thing he knew best: he got on his bike.
He spent the first few years after his diagnosis challenging himself to achieve new personal records in cycling, both as a way of coping and proving to himself that he could still do what he put his mind to.
By the time he was 26, after riding from San Diego, CA to Memphis, TN, Kyle’s passion became so much more. That’s when the idea for rideATAXIA, a program of the Friedreich’s Ataxia Research Alliance (FARA), got wheels of its own. Kyle began organizing rides to fund FA research for his organization that now has locations in five states and plans rides across the country.
“Hearing there’s no treatment or cure was a huge blow, so cycling and fundraising became our therapy— how we dealt with the disease and continue to deal with it,” Kyle says. And even though Kyle had to trade in his standard bike for a more handicap-accessible Catrike 700 model, it hasn’t slowed him down.
To read more about Kyle Bryant’s remarkable story visit: http://snip.ly/e1eA