Setting new standards in information exchange for the pharmaceutical and biotech industry
Bringing the Patient Voice to Disruptive Innovations Conference
September 19, 2014
A huge thanks to our patient speaker, Julie Flygare for her excellent presentation on “How a Patient Helped to Define a New Clinical Endpoint in Narcolepsy.” Diagnosed with narcolepsy with cataplexy in 2007, award-winning author and founder of Project Sleep, Julie shared her story to an audience of just over 300 disruptive thinkers in drug development.
Julie is one of those exceptional people who is taking her disease to help all kinds of patients through her involvement with the FDA in helping them develop a clinical end point.
See Julie’s blog post from the DPharm conference.
We were also honored to welcome our first patient judge to Dpharm Idol, Linda Morgan. Linda a research advocate and chair of the patient’s council at the Parkinson’s Disease Foundation helped define the Dpharm Idol 2014 winner, ePharmaSolutions.