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What to Expect at the 2nd Annual Patients as Partners EU Conference


  • January 10, 2018

  • The 2nd annual Patients as Partners EU conference is right around the corner and we are pleased to announce the event agenda is available on-line. This program is the only conference in Europe co-produced with industry and patient advocacy that demonstrates how to involve patients throughout the entire medicines development life cycle to drive greater efficiencies in clinical research.

    Patients Included, Ask the Patient Program and Patient Tool Box

    The Patients as Partners EU program is officially Patients Included-accredited. It is the only event in Europe with the “Ask the Patient” program, which provides face-to-face opportunities to speak with patients who’ve experienced a clinical trial and includes our Patient Toolbox to capture key ideas and actions.

    Unparalleled Patient Collaboration

    Dr Alexandra Moutet will discuss how UBC has incorporated the patient into every stage of the medicine lifecycle. Also, our Patients as Partners EU program features case studies from Bristol-Myers Squibb, Pfizer and Santhera Pharmaceuticals that provide real world insights into patient involvement in clinical research.

    Amgen’s Dr Tony Hoos leads a multi-stakeholder discussion on what good patient practice looks like and how the quality of patient involvement has evolved since the induction of multiple initiatives.

    Claire Nolan and Chris Macdonald will share the patient advocacy organization perspective on how to strike a practical balance of delivering effective research outcomes whilst ensuring relevance through principled and meaningful patient involvement.

    Notable Sessions

    Genetic Alliance UK Director Alastair Kent will kick off day two of Patients as Partners EU with a session that focuses on what a patient-centered healthcare system will look like in the next five to 10 years. Other notable event speakers include Jennifer Kelly, who will discuss how to implement patient opinion leader advisory boards, and Dr Clare Shaw, who will examine ways to empower the public to sign up for clinical trials.

    Real World Insights

    CISCRP presents the findings from their Patient Perceptions & Insights two-year study to help you identify opportunities to better inform and engage patients as partners in clinical research. CISCRP’s Director of Research Services, Annick Anderson will present the findings.

    Patient View on Mobile Technology in Clinical Trials

    Cancer Survivor Cindy Geoghegan will share details about a US Clinical Trials Transformation Initiative project involving patient perspectives on mobile in clinical trials.

    EMA 1st Public Hearings Update

    Nathalie Bere, MSc, of the European Medicines Agency (EMA) will provide an update on the first public hearing with patients on risk assessment. Additionally, Patient Advocate and Patient Advocate Highlights:

    • Claire NolanResearch Involvement ManagerParkinson’s UK
    • Richard StephensPatient/Consumer Lead, Chair Consumer ForumNational Cancer Research Institute
    • Chris MacdonaldResearch Involvement ManagerArthritis Research UK
    • Bettina RyllFounderMelanoma Patient Network Europe
    • David HaerryPatient and AdvocateEuropean AIDS Treatment Group
    • Viorica CursaruPatient AdvocateMyeloma Euronet Romania

    Networking Opportunities

    Networking opportunities are readily available during breakfast, lunch breaks, the reception an in the exhibit room. Attendees can ask questions to the speaking faculty throughout the event. Plus, our Medical Heroes are available to answer questions about their clinical trial experience.

    Building a Better Future

    The Patients as Partners EU conference room will be set up in rounds, and each table will be provided with a “Toolbox” and an assortment of materials to help you capture ideas. Meanwhile, each session concludes with a list of key takeaways, which means you will walk away with a toolbox full of ideas to drive patient partnerships.

    Click here to register for the 2nd annual Patients as Partners EU conference, and follow the event discussions on Twitter using hashtag #PatientsEU2018.