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Newly Formed Patient Advocacy Coalition to Tackle Pressing Healthcare Issues to Give Patients Access to Affordable, Patient-Centered Care


  • December 3, 2015

  • Breaking news was announced December 3rd about a new patient advocacy coalition called “Partners for Better Care (PBC)” that was formed to address health care issues and improve patient care. Additionally, while the coalition’s goal is to improve health care for all Americans, each member organization is also seeking to improve the health care system for patient groups they represent as advocates.

    PatientsAsPartnersLogoWe are extremely excited to see that there are so many initiatives being taken to really put patients first. Our goal, along with many others, is to provide an outlet to ensure that patients are having a hand in helping drive clinical development and outcomes along with improving their experiences in clinical trials. This article compliments our 3rd Annual Patients as Partners program where we work with patients, advocates, industry, regulatory amongst many others to share strategies to increase patient involvement across the clinical development continuum.

    Abstract: (Washington, D.C.) – Patient advocacy groups announced today the launch of Partners for Better Care (PBC), a nonpartisan coalition beginning with over 10 million patients who seek to advance a common goal: better health care for all Americans.

    “High quality medical care is available in the United States, but many Americans are unable to access the care they need,” said Mary Richards, Executive Director of Partners for Better Care. “Access to affordable, patient-centered care is critical.”

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    SOURCE: Partners for Better Care Website

     

    Statistics show that for most Americans, affordable, patient-centered care remains out of reach. Among insured adults in 2014, 20 million had a medical problem and did not visit a doctor or clinic, 12 million did not get needed specialist care, and nearly half of middle class workers skipped healthcare services or fell into financial hardship because of health expenses. [Commonwealth Fund, January 2015]

    Seeking to improve health care in the U.S., PBC’s inaugural members—AIDS United, American Liver Foundation, Amputee Coalition, the Christopher & Dana Reeve Foundation, Hemophilia Federation of America, The MAGIC Foundation, National MS Society, Parkinson’s Action Network and United Cerebral Palsy—all bring to the initiative strong and effective patient advocacy leadership.

    Read the full release here: http://snip.ly/HotS

    To learn more about Partners for Better Care visit: http://partnersforbettercare.org/about/

    To learn more about the 3rd Annual Patients as Partners conference visit: http://theconferenceforum.org/conferences/patients-as-partners/overview/