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The Conference Forum is pleased to announce that the 7th annual DPharm: Disruptive Innovations to Advance Clinical Trials program is officially Patients Included accredited.
The History of DPharm Patient Participation
“When was the last time you thanked a patient for being in a clinical trial?” This was the question asked of our R&D industry audience seven years ago at the first DPharm meeting by our keynote speaker, Greg Simon, head of policy at Pfizer at the time and now President of the Biden Cancer Initiative.
Sadly, no one in the audience raised their hand, but it was a huge light bulb going off. We knew we had to find patients and welcome them into our research and at our programs. The following year, we welcomed our very first patient speaker, Jeri Burtchell, who taught us so much about what really matters to patients. Out of DPharm, we launched Patients as Partners, and now we present Patients as Partners in Europe as well. Fast forward to 2017, DPharm is proud to feature “Ask the Patients”.
“Ask the Patients”
Literally at the center of the program, we have roughly 15 patients attending DPharm as part of the speaking faculty to help industry understand what it is like to be in a clinical trial or have an impact in designing one. “Ask the Patients” also gives DPharm attendees the opportunity to talk at length with patients about their experience. DPharm has a dedicated center with several tables to network with patients. “Ask the Patients” is designed and led by both patients and patient advocates. Opening patient keynote speaker, Jessica Melore, will also join the “Ask the Patient” program during the morning break on September 7.
We want to especially thank Patient Advocate, Bray Patrick-Lake, Duke Clinical Research, for her advisory role and for being our guest co-chair. Our other lead Patient Advocate in an advisory role is Sara Krug, CEO, Cancer 101, and we want to thank her for serving as the chair of the DPharm Idol judging committee and for helping our patients in the “Ask the Patients” program.
DPharm is accredited by Patients Included and addresses ultimately what will engage and serve our patients best in clinical research. More specifically:
- Patient keynote highlighting the topic of service
- “Ask the Patient” Program
- Several sessions dedicated to patient participation and engagement, including the ADAPTALE study from PCORnet
- Patient disrupting sessions led by patients
- The latest on technologies/apps to help patients in clinical research, including ambient technologies
- Dedicated workshop on co-design to create solutions to assist clinical research participants
The Patients Included charter enables conference organizers to demonstrate that their events are committed to incorporating the experience of patients as experts living with their condition, while ensuring they are neither excluded nor exploited. Patients Included status is self-assessed. A conference successfully meeting all five of the charter’s clauses may accredit itself as a Patients Included event. The 7th annual DPharm: Disruptive Innovations to Advance Clinical Trials conference fulfills the five Patients Included charter clauses as follows:
Patients or caregivers with experience relevant to the conference’s central theme actively participate in the design and planning of the event, including the selection of themes, topics and speakers.
- Patients, caregivers and advocates were invited to join the advisory board planning committee where they provided significant input on content development, potential speakers and community outreach. Additionally, patients, caregivers and advocates on our advisory board committee have participated in our non-profit radio blog PharmaTalkRadio, where we provide free access to helpful information for those in the life sciences arena.
Patients or caregivers with experience of the issues addressed by the event participate in its delivery, and appear in its physical audience.
- Patients, caregivers and advocates were invited to participate in the program and will lead the “Ask the Patient” program, participate as the opening keynote, solo presentations, panels and as a judge on DPharm Idol.
Travel and accommodation expenses for patients or caregivers participating in the advertised program are paid in full, in advance. Scholarships are provided by the conference organizers to allow patients or caregivers affected by the relevant issues to attend as delegates.
- Patients and caregivers on the speaking faculty qualify for expense coverage for travel and participation at the conference, payable in advance if requested. The conference organizers have allocated a budget that covers their registration, travel and accommodation expenses. Additionally, there are scholarships available to assist patients in clinical trials, who can benefit from the information at the event, but cannot afford the registration fee. There is a reduced registration as well for full-time patient advocates. For information on how to apply for a scholarship, please email Customer Service.
The disability requirements of participants are accommodated. All applicable sessions, breakouts, ancillary meetings, and other program elements are open to patient delegates.
- All on-site events presented by The Conference Forum provide disability accommodations.
Access for virtual participants is facilitated, with free streaming video provided online wherever possible.
- The official hashtag of the conference is #dpharm2017